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About

We are developing a peer-to-peer resource for people living with dementia who find that their sense of taste and/or smell is changing.

Agnes Houston came up with the idea and it builds on the ‘Dementia and Sensory Challenges’ booklet that she produced last year (see below to download a copy).

Outside the Box is working alongside Agnes on this project which is funded by Life Changes Trust.

This project is closely linked to our Food Buddies project which is developing peer support for older people with challenges around food.

What we are doing

We are gathering the experiences of people living with dementia about changes to their sense of taste and/or smell.

From this, we will produce a booklet which will:

  • Explain how this happens to some people
  • Share tips on how to adapt and live with the changes – such as what you eat and still enjoying the social aspects of food
How you can help us

We’d love to hear about your experiences and tips.

We have a few questions (below) to get you started and help us gather what people tell us.

  • You could answer these yourself.
  • You could talk it over with someone else and get them to ask you the questions and record what you say.
  • You could discuss it as a group with other people who live with dementia, and share your tips with each other as well as with us.

Please send your answers to us – you can:

  • Send an email to Ciara: ciara@otbds.org
  • Send your notes to us by post:
    Ciara Maguire / Outside the Box / Unit 10 / 150 Brand Street / Glasgow / G51 1DH
  • Give us a call: 0141 4190451
Questions: Adapting to changes in your sense of taste or smell
  1. Tell us a wee bit about yourself.
  2. How did you first notice that your sense of taste and/or smell was changing?
  3. What are the changes that you experience?
  4. How does this affect you in day-to-day life?
  5. What about the social aspects, such as having meals with people or seeing friends?
  6. How do you feel about all this?
  7. Did you get helpful advice or support from other people? (such as your family & friends / doctors & other professionals?)
  8. What are your tips or message for anyone else in this situation?
  9. Do you have any tips or message for people such as families and professionals?
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Outside the Box is a certified living wage employer